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The Story Within

<P>In <I>The Story Within</I>, authors share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. </P><P>People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what "health" is or whose life has value. They write hoping to expand conversations about genetics and identity—to deepen debate and generate questions. Whether they or their families are affected by Huntington’s disease, Alzheimer’s disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia, their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal.</P>
 

  Autore: Boesky Amy (EDT)  
  Editore: Johns Hopkins Univ Pr  
  Isbn: 142141096  
  EAN : 9781421410968  
  Data pub. 25 Sep 13  
  Collana: Johns Hopkins Univ Pr (Paperback)  
  Classificazione:MEDICAL  
  Prezzo: € 25,50  







 
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